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Showing posts from April, 2021

Spoon Theory: managing energy levels with a chronic condition

I still remember the day I was diagnosed with narcolepsy (a chronic sleep disorder that causes excessive daytime sleepiness) at the beginning of 2019. I remember sitting nervously while sitting in the waiting room for my results of my sleep study, I remember the shock and wanting to fight back tears when the practitioner labelled me with a life long medical condition, I remember feeling lost when given a script for medication with significant side effects and no other advice or resources, and I remember the frustration when trying to advocate for myself to employers, doctors, friends and family to make sure I got the support I needed. I needed a way to explain my support needs and I needed validation for what I was experiencing. That is how I discovered spoon theory. Spoon theory  is a metaphor that is used to describe the amount of mental or physical energy a person with a chronic illness or disability has available for daily activities and tasks. The theory was developed by Christine...